Tom Lyman sits down with Jonathan and Kayla Mansour to talk about their daughter Marley, known by many as “Marley the Rare.” They walk through the long road of noticing delays, years of searching for answers, and the moment they finally received a diagnosis, only to be told it was so rare there was little information to guide them.
But this conversation is not just about the diagnosis. It’s about what God does in the waiting. Kayla and Jonathan share what it has looked like to fight discouragement, choose gratitude, and keep showing up with faith while they pursue a treatment that is costly, uncertain, and bigger than them. They also talk about the unexpected miracle of community, how people have stepped in with generosity and encouragement, and how Marley’s tender faith has opened doors to reach humanity far beyond their own circle.
If you’re carrying a long battle, raising a child with special needs, or learning how to trust God when you don’t get quick answers, this episode will put language to what you’re feeling and remind you: you’re not alone.
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